Y'all know that I have a "go big or go home". This is not news. But this past week I took it to a whole other level. We made the decision that instead of school she was going to do neuro the whole day for the whole week. The child that was having problems was up at 7:30 AM and starting neuro by 8. We did it all. day. long. From 8-4 that is all we did and only stopped for lunch and power snacks. It is a LOT of physical work and required almost hourly feeding.
The music has been loud and the motivational cheers have been louder.
The child whose body could not tell that it was too cold to wear shorts in 20 degree weather now has a regulated body temperature. She can now correctly identify all the spots on her arm, when you touch them, without looking. In the past she was very superficially charming, dissociated a lot and now she has age appropriate behavior with no noticeable dissociation. She acts like she is indeed 12 (which she is.) She has always been unable to follow more than 2 step directions. Now she can follow 3, 4 and 5 step directions. It took her until Saturday before she finally figured out how to belly crawl correctly. (Remember, you cannot tell them how to crawl, they have to figure it out on their own.)
Before neuro boot camp if she had not seen either of her parents for a day or so she would start crying uncontrollably the minute she saw them and would continue to cry for long periods of time instead of enjoying seeing them and crying when they would leave. It was always a very unreasonable response and very infantile. She saw her father three times during boot camp last week. The first time was early last week and again she cried uncontrollably. Then she saw her father on Saturday and for the first time EVER had an appropriate reaction. She was happy to see him and when it was time for him to leave she hugged him and was verbally appropriate. She also proudly told him of all her accomplishments. Today we all met at therapy and again she had a totally appropriate reaction to seeing her father. We were all surprised including Kristy.
She has been so much fun to be around all week, so compliant and willing to do all the exercises. When the family was doing them on the regular schedule with the prescribed amounts she hated doing them and would sabotage the exercises. When we started doing them in large amounts during boot camp she wanted to do them more and more each day and would try harder each day. Every day she would surprise me and her mom with her willingness and the way her attitude and mannerisms changed. Her mom and I would talk about it each evening and neither of us could believe the differences that we were seeing.
We were all shocked to learn that she had lost 12 pounds even though she's eating almost hourly. I think I need to do this boot camp on myself.
It needs to be said that we ALL had fun doing this. Was it hard? Yes. But it was still fun because we made it fun and the results are astounding. A week ago Sunday night I didn't think we'd ever make it because it was Chinese water torture doing the exercises as they were prescribed and the regression was really not pretty. But by doing it boot camp style we did make it and I am so proud of all of us but especially of Wonder Girl. I am totally finding (or having made) a Wonder Girl swimsuit for her because she has astounded me every day.
Today ended our 8 day camp.
This is a sample of our schedule last week.
FYI: Every time you see back patterns it is technically called Tonic Neck patterns and every time you see stomach patterns it is technically called Homolateral Patterns.
Yoga
Morning routine
Neck rolls
Yoga release pattern
Neck rolls
Back patterns (180)
Stomach patterns (60)
Breakfast
Brushing
Neck rolls
Compressions
Belly crawling (7 min)
Brushing
Regular Crawling (7 min)
Compressions
Hooping 15 min
Stomach patterns (60)
Back patterns (180)
Neck rolls
Brushing
Yoga Release pattern
Compressions
Sitting in power ring
Belly crawl (7)
Brushing
Knee Crawling (7)
Compressions
Neck rolls
Stomach patterns (60)
Back patterns (180)
Brushing
Lunch clean up
Compressions
Crawling (7)
Brushing
Belly crawling (7)
Compressions
Neck rolls
TRE (Trauma Release Exercises)
Neck rolls
Plank
Brushing
Hooping
Compressions
Neck rolls
Belly crawling (7)
Brushing
Crawling (7)
Compressions
Hooping 15 min
Brushing
Back patterns (180)
Stomach patterns (60)
Compressions
Hooping
Brushing
Belly crawling (7)
Compressions
Crawling (7)
Stomach patterns (60)
Back patterns (180)
Brushing
Yoga
Neck Rolls
Plank
Neck rolls
Compressions
Then 4 REALLY tired people fell into bed.
Tomorrow, we are starting 8 day boot camp for J. I cannot wait to see the changes. She wasn't so sure about it this morning but by this evening she was proud of herself and she had already lost the startle factor. This is something that has lingered and nothing we have done has helped it. This afternoon it was gone. Where will we be in a week? I don't know but I can't wait to find out.
1 comment:
This sounds SO exhausting! Oh my word! I definitely need to pick your brain about it. In ONE WEEK! :-D
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